Six years ago today, on the first day of her sweet life, I nearly lost my daughter. The events surrounding my pregnancy, labor, and her infancy highlight precisely what is right and wrong, innovative and outmoded about our current medical system. If you thought squatting behind a bush was scary, try having the most meaningful thing you will do in your life be taken completely out of your hands and put into the hands of a broken system.
Jason and I were engaged, but not expecting to get pregnant. Like most first-time parents we were scared, excited, confused, but we knew it would work out somehow. I worked as an artists’ model at the time and had no insurance or maternity leave, or anything fancy like that, so I had to get medicare. Applying for medicare or any other public welfare service, by the way, was enough to make me go postal, but I’ll save that for another time!
My prenatal care was not bad. I went to a woman’s care clinic at Drexel University in Philadelphia, and mostly saw nurse practitioners, who were kind and sympathetic, and happily answered my questions. I have to say that nurses and nurse practitioners do not get enough credit. They work hard, and they did not insult my intelligence, like the doctors did. I lost those connections I made, however, once my pregnancy got got bumped to “high risk” and had to see a doctor at the Hospital. I was told over and over that this would be top notch care, and I would be taken care of. Suddenly, we were vaulted into this other world. The clinic I went to was very personal. We all got to know each other, we patients watched each other’s bellies grow, and watched the older brothers and sisters play. The people there were interested in educating the patients, many of which were teenagers or young, uneducated women. The hospital, on the other hand, was creepy and clinical, but “state of the art.” And we had no choice but to go there.
So, I would get hooked up to things, have tests done, nobody really told me what any of it was about. The doctor would give me a long list of things to be concerned about, like brain damage, poor heart health, and others that were less serious. It was really scary, I didn’t know what was going on, and nobody really knew what to expect. Some things had been determined, but what did it add up to? Nobody knew. I would probably have to have a C-section, but I thought I would like to avoid it if possible. Through out this time, I could only take care of myself, and hope for the best.
Oh, and this was great- I had to take a birthing class that involved watching a video, and being told about vaginal birth vs. cesarian. This was for 3 hours. With insurance, I could have gotten some proper, fancy lamaze classes or something, but I didn’t have money, so I wasn’t good enough for that. I also learned, on the hospital tour, that I wasn’t allowed to use any of the big bouncy ball things, or rockers, or any of the other goodies for anyone who had a midwife, or whose insurance allowed. I remember crying that day, because I knew I would not get the birth that I wanted for myself and my baby. Nobody really understood. She would be born one way or the other, I should be grateful I didn’t have to squat behind a bush.
Okay, fine. Buck up, kiddo, this is the miracle of life we’re talking about. Okay. I could handle this.
July 5, 2003, I my water broke. I had no contractions, but I had to go straight to the hospital to avoid any infection. The weather was wild, windy, thunderous, and torrential. Is that foreshadowing? It might be. Anyway, I got to the hospital and was immediately strapped to a bed, and monitored out the wazoo. I really had the urge to move, and I know that walking, etc. can help to bring on contractions. But I wasn’t allowed to do that. I wasn’t allowed to get up to take a walk, go the bathroom, sit in a chair. I had to lay strapped to that damn bed for 27 hours so I could be monitored. I’m a little bitter about that.
I wasn’t yet having contractions. They waited all of two hours and decided I needed to have some contractions. So they hooked me up to an I.V. (I believe it was picotin, but I don’t remember) and induced labor. Then the contractions weren’t coming fast enough so they gave me more. Before I knew it, my middle tightened, wrenched in pain. There you go, people! Here’s your contractions! I know life doesn’t always happen like it would in a textbook, but, labor is a process. It starts gentle and mild, and progresses. I think it would be more easily handled that way because the mother is being eased into the process. Maybe it’s just me? Apparently, I was the only one who thought of this in the delivery room. That didn’t really matter, though, for some reason. I kept saying “I just want to take a little walk” and being told no, I must be monitored.
So this went on. I turned into a bitch, it was totally one of those things you see in the movies. I even yelled at my Mom. The pain was excruciating, but my body hadn’t caught up to the level of contractions, I was hardly dilated, and the baby was way up in there. I was screaming for drugs, I’ll admit it! But I wasn’t allowed drugs, because I wasn’t dilated enough. I was fully in “me against them” mode. I took my crap off so I could stand up and feel my ass again, but the nurses caught me and ran in. I was ready to defenestrate somebody, when the doctor said I was dilated enough for an epidural. This was thrilling! Finally, this quackery is working to my advantage! Except I had a student administer the shot. Not only did it not take, but it gave me the shakes. So just so you can picture this- ungodly pain in my abdomen, shaking uncontrollably and not allowed to move. My hair at this point was on giant knot. All of these residents and doctors came in asking inane questions, and about the complications with the pregnancy. I guess charts are for losers. The cool doctors don’t look at charts or ask the Dad-to-be. Ask the crazed woman strapped to the bed yelling at her mother.
Finally, after more epidurals that didn’t work I got a “spinal.” I don’t remember what it was but it worked. One nurse told me I shouldn’t be completely numb so I could know when to push. I saw her point, but told her to fuck off. This was the road I was on. If I were allowed to have my body work at it’s natural rhythm, sure, but it was too late for that. I just want point out, that I am not mean or rude to people, but this was a very frustrating situation, and these are the sort of things that happen you you are stripped of your power.
So after 27 hours of this nonsense, she wasn’t coming, and I had to have a C-section. At that point I hadn’t slept, eaten, or had a drink in over a day, so I was game, not that it was a choice. All of the doctors and nurses that did the procedure were wonderful, and knew I had been through a lot.
July 6, 2003, at 3:15 P.M., Maia Grace is born. I got to see her, and Jason got to hold her. she was big and healthy, so it seemed, but she began gagging on some fluid, and she was whisked away to the nursery.
Time passed, visitors came and went, I didn’t get to see my baby. I told the nurse I wanted to breastfeed, and to bring her when she got hungry. I finally got to hold her that night, and she tried nursing for a while, but started coughing and stopped. Then she wouldn’t open her mouth. I tried burping her, and she wouldn’t burp. I had a great nurse, sitting with me, and she said, they wanted her back in the nursery, but that I should keep her as long as everything seems fine. So I did. I hadn’t slept for two days, but I clutched her and stared at her, grateful that she was in my arms at last. All of it was worth it. I was finally so exhausted, that I couldn’t hold her anymore, and the nurse took her back to the nursery, and I drifted off to strange dreams.
The next day, I woke up and thought about it, shouldn’t she have gotten hungry by now? I’m guessing it was about ten in the morning, and I hadn’t seen Maia, nor had any of the staff found out what was going on. Or at least they hadn’t told me. I finally got a visit from a doctor, and here’s what happened. They were concerned that Maia had not been eating, so someone had force fed her a bottle of formula. She choked, they continued to feed her. She turned blue, and couldn’t breathe. They had to resuscitate. They did tests. They did an ultra-sound reveling the problem- a tracheal esophageal fistula (TEF), meaning her esophagus did not connect to her stomach. Her lungs had filled with the formula, and she was lucky to be alive, and lucky to not have pneumonia. All of this happened with out my knowledge, I’m sure they just wanted to keep me from freaking out, but I freaked out anyway.
Maia was immediately transfered to a Children’s Hospital and operated on the next day. Today she is running around with her friends and little sister, playing jump rope and singing Cyndi Lauper. They were amazed at how quickly she recovered from her surgery and has been a poster child of good health ever since.
My conclusions are this- there are good people out there in the health care industry, I know some of them, too. I think the best ones respect their patients and listen to them. I know my own body better than anyone else, even if I didn’t go to med school. Medical technology saved my daughter’s life, and fifty years ago, she would have had to starve to death, but I got treated like a lab rat, and didn’t appreciate it. And when you ain’t got no money, honey, you have no choice in this system. The decisions are made for you. And by the way, my diet was impeccable during my pregnancy. If it hadn’t been- I can’t even imagine.
This is one of the reasons I became a Health Counselor. Technology is great, and necessary, but people are where the quality comes in. Patients deserve respect, and choice. Care takers need to listen, and make decisions based on the individual. There is a better way that is more affordable, and empowers the individual to take their health into their own hands. And the human body needs to be respected- it’s rhythms, and it’s ability to heal itself. Imagine that.